Current Events > Does anyone here have any experience with Multiple Sclerosis?

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Flasbangs
12/29/17 3:04:20 AM
#1:


Last month I had an MRI done after having symptoms for a year and a half. They found 15 lesions on my brain. My hands feel like they are full of sand and sort of constrained, like when you wear thick gloves. I have this feeling around my stomach, just below the ribs, like a tight band is wrapped around me.. This feeling have been getting worse and worse with no relief for more than a year now. I'm incapable of running, my lower legs feel like they are full of lead and have the same constrained feeling my hands have.. If I walk for more than 10 minutes, my right leg just goes almost completely limp, I have to drag it after me.

MS has not been confirmed yet, but the neurologist seems almost certain that this is what it is. I just want to hear from some of you if you have experience with this thing.. Does it compare to your experience? I'm only 28.. I don't want my damn nerves quitting on me already..
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"That's the metaphorical equivalent of flopping your wedding tackle into a lion's mouth and flicking his love spuds with a wet towel" - Arnold Rimmer
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MrToddWall
12/29/17 4:07:34 AM
#2:


RIP my fam
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BalanceLost
12/29/17 4:17:44 AM
#3:


I have some experience of it through our neuro clinical practice (I dont work in neuro though so its been a while since I met someone with MS). Usually the symptoms come in episodes. Which functions are affected can also vary a bit. But symptoms in hands and legs are most common if I remember correctly. MS can also affect your speech since speech depends on muscle strength and movement. There are meds which reduce the symptoms so I hope you get a diagnosis soon.
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"BalanceLost has a steam-powered PS2 because Sweden don't have electric" - dimeanatrix
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Second_Chances
12/29/17 5:05:21 AM
#4:


A family member suffered from it for most of my life. Watching the progression was awful, both the physical and mental problems that arose. They gradually lost all their motor function, with about five years in needing someone to carry them into and push their wheelchair if they had to get anywhere, or change their clothes and other garments. I think they might've still been able to crawl for a while at that point. By the end, they couldn't even use their hands to feed themselves anymore. The mood swings they would get would be aggravating at some times, and heartbreaking at others. Their level of awareness fluctuated a lot, too. The last ten years of their life were spent bedridden in a nursing home due to a constant risk of seizures and our family being unable to keep up with the care needed any longer, even with hired help. I hear it was a particularly bad case, though.

I hope whatever your case may end up being, that it's better than theirs. I think these days there are meds that help stop it from getting worse, or at least I remember seeing news stories about it back when. The doctors said they were too late to make a difference for the person I knew with it, though.
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