Current Events > My 9 day old son is having open heart surgery tomorrow.

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Ar0ge
08/24/22 7:25:05 PM
#1:


When he was a 20 week fetus, he was diagnosed with a rare congenital heart disorder called hypoplastic left heart syndrome. We almost terminated the pregnancy at that time for medical reasons...We ultimately decided against that.

Tomorrow, he will be getting his first of three open heart surgeries that are necessary to keep him alive. The success rates for these surgeries have improved dramatically in the last 5 to 10 years, but they still aren't the greatest. Though we have seen and met many people with this condition live well into their 30s (these surgeries have only been around since the 80s so there isn't a lot of data of people living into their 40s and 50s with this condition).

It's been very tough week in NICU waiting for tomorrow. And it's gonna be an even harder week, month, year ahead. Not sure why I'm typing all this out. Just... wish us luck with the surgery I guess.
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Turbam
08/24/22 7:25:52 PM
#2:


Fuck man, I hope it goes well

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inTaCtfuL
08/24/22 7:26:23 PM
#3:


Damn

You got this little man. I believe in you

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g0ldie
08/24/22 7:26:57 PM
#4:


hoping for the best

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Bad_Mojo
08/24/22 7:27:58 PM
#5:


My thoughts are with you family. A friend of mine I had in my early 20s had a daughter that had a pacemaker in her when she was just a baby, and she had to go in every few years to upgrade it because her heart would keep getting bigger. It always went well, but I'm sure it's very scary as a parent.

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CRON
08/24/22 7:31:57 PM
#6:


I hope everything goes well!
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COVxy
08/24/22 7:32:44 PM
#7:


Wishing you and your little guy the best.

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TomClark
08/24/22 7:33:42 PM
#8:


Fuck.

Wishing the little dude the very best of luck for a speedy recovery.

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Naysaspace
08/24/22 7:35:51 PM
#9:


my good friend had something similar. he's 35 now and lives a healthy, normal life. lots of surgeries. good luck.
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Fimbulvetr
08/24/22 7:37:42 PM
#10:


Best wishes to you and your family, cant even imagine what youve been going through.

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GameGodOfAll
08/24/22 7:38:41 PM
#11:


Really hope everything works out perfectly. That's a hell of a battle to fight, but it's a great thing you're there for him and doing what is best to give him a better life. Gotta take an enormous amount of strength to even face that kinda shit. Just stay strong for him your family and yourself. You got this.

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Smackems
08/24/22 7:38:51 PM
#12:


Hope it goes well. Just be there for him best you can, hard as it is

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Kirby_Chao189
08/24/22 7:43:12 PM
#13:


I wish all the best for the three of you, it must be so stressful and you must feel so powerless. Good luck man. Keep us updated.

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Bishop_Hastur
08/24/22 7:58:52 PM
#14:


Hope it goes well. And as a guy who has heart issues I'm glad to hear the success have gone up. Cause when they diagnosed me back in the 80s the docs told my parents that it was 97% chance of failure, which is why I've been playing the worst waiting game ever.

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Questionmarktarius
08/24/22 8:00:31 PM
#15:


Ar0ge posted...
hypoplastic left heart syndrome
ohshit.
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gatorsPENSbucs
08/24/22 8:01:54 PM
#16:


Turbam posted...
Fuck man, I hope it goes well


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Ar0ge
08/24/22 8:04:31 PM
#17:


Bishop_Hastur posted...
Hope it goes well. And as a guy who has heart issues I'm glad to hear the success have gone up. Cause when they diagnosed me back in the 80s the docs told my parents that it was 97% chance of failure, which is why I've been playing the worst waiting game ever.

Damn. Would not have liked to hear those numbers.

The procedure tomorrow is the riskiest of the 3. But this hospital has a success rate of 85-90%. The other 2 surgeries are not as risky, but the chances of people living into their 20s after these surgeries without needing a heart transplant are around 50-60%.

Still, we are gonna give him every chance we can. And I'd be happy if he could make it to his 20s before needed a transplant. A transplant then could give him another 10-20 years after that.

Thanks everyone. I will post in this topic with an update tomorrow evening. Hopefully with good news.

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NocturneD85
08/24/22 8:07:09 PM
#18:


I hope it goes well for your son and wish him a good recovery. Keep on trucking.

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ZMythos
08/24/22 8:07:47 PM
#19:


Hope your son pulls through.

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darkmaian23
08/24/22 8:10:39 PM
#20:


I'll be keeping a good thought for you and your family.

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Ruvan22
08/25/22 10:24:23 AM
#21:


A bit late to the thread but hope it went smoothly TC
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emblem-man
08/25/22 10:41:11 AM
#22:


Hoping for the best for your son TC

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Will_VIIII
08/25/22 10:43:44 AM
#23:


Hoping everything goes well

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ChrisTaka
08/25/22 10:46:10 AM
#24:


I wish the best for you and your family TC.

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Dat_Cracka_Jax
08/25/22 10:46:24 AM
#25:


Sending good vibes your family's way. Hope things go well and he has a long and happy life.

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BuzzKilljoy
08/25/22 10:49:29 AM
#26:


Good luck man.

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masterpug53
08/25/22 10:52:01 AM
#27:


Best of luck to you and the little guy, here's hoping you all have a long, happy, healthy life together!

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TaylorHeinicke
08/25/22 10:56:37 AM
#28:


Ruvan22 posted...
A bit late to the thread but hope it went smoothly TC


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RiKuToTheMiGhtY
08/25/22 11:18:10 AM
#29:


I am sure that no parent wants to worry about their child in such a surgery, I hope all goes well for you.

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famfam
08/25/22 11:19:31 AM
#30:


good luck to you and your family
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littlebro07
08/25/22 11:20:03 AM
#31:


Ruvan22 posted...
A bit late to the thread but hope it went smoothly TC


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Cleo_II
08/25/22 11:40:00 AM
#32:


I hope everything goes smoothly for your boy. Best of luck and big hugs to you and your wife.
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Ar0ge
08/25/22 11:55:31 AM
#33:


Thanks everyone.

Unfortunately, they've had to postpone the surgery for unrelated issues until HOPEFULLY tomorrow.

So, I'll just post an update whenever the surgery is done in the next few days. This waiting is fucking killing me though.
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Foppe
08/25/22 11:57:32 AM
#34:


I hope it goes well.

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Bad_Mojo
08/25/22 12:00:11 PM
#35:


Ar0ge posted...
Thanks everyone.

Unfortunately, they've had to postpone the surgery for unrelated issues until HOPEFULLY tomorrow.

So, I'll just post an update whenever the surgery is done in the next few days. This waiting is fucking killing me though.

Did you feed him anything? I once tried to become a CNA, and I remember something about not eating or drinking anything 24 hours before an operation.

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Cleo_II
08/25/22 12:01:16 PM
#36:


Ar0ge posted...
Thanks everyone.

Unfortunately, they've had to postpone the surgery for unrelated issues until HOPEFULLY tomorrow.

So, I'll just post an update whenever the surgery is done in the next few days. This waiting is fucking killing me though.
I am so sorry. The wait must be gut wrenching. Hang in there.
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Ar0ge
08/25/22 12:09:19 PM
#37:


Bad_Mojo posted...
Did you feed him anything? I once tried to become a CNA, and I remember something about not eating or drinking anything 24 hours before an operation.

He had a midline IV that unfortunately infiltrated and caused some inflammation in his arm tissue.

Since the procedure is a very complicated heart surgery, the surgeon did not feel comfortable having that as another variable. So they are going to wait over night for that to get better.

Really annoying. But there's nothing we can do but wait.

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TomClark
08/25/22 12:10:17 PM
#38:


The wait must be agonising, I'm sorry.

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CARRRNE_ASADA
08/25/22 12:11:09 PM
#39:


Wishing him all the best. Hang in there!!

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Bad_Mojo
08/25/22 12:12:03 PM
#40:


Ar0ge posted...
He had a midline IV that unfortunately infiltrated and caused some inflammation in his arm tissue.

Since the procedure is a very complicated heart surgery, the surgeon did not feel comfortable having that as another variable. So they are going to wait over night for that to get better.

Really annoying. But there's nothing we can do but wait.

Oh, okay. I was going to say it must be hard to not feed your son for a whole 24 hours.

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eggcorn
08/25/22 1:19:45 PM
#41:


Hey good luck, I bet the little guy is tough. I can't imagine how you feel right now.

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fan357
08/25/22 1:37:03 PM
#42:


Good luck man.

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STEROLIZER
08/25/22 1:38:08 PM
#43:


Prayers and thoughts for you brother.

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#44
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KogaSteelfang
08/26/22 12:57:22 AM
#45:


Prayers and best wishes.

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GGuirao13
08/26/22 3:17:22 AM
#46:


Hopefully everything goes well.

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Shotgunnova
08/26/22 3:53:02 AM
#47:


Hopin' for the best, man.

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noisetank
08/26/22 3:54:55 AM
#48:


really hope everything goes well for your son

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Malcrasternus
08/26/22 3:55:59 AM
#49:


Best of luck.

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KaZooo
08/26/22 9:12:42 AM
#50:


Good luck to your son

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