Current Events > My new medication comes to $292,000 a year....

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ZCheveyo 07/17/18 5:26:25 PM #1:	Just started a new medication Symdeko, which replaced my previous specialty medication Orkambi. It took a while for me to be able to get the approval and I just found out that they are charging $292,000 a year for the regimen. That shit is crazy. It's two pills a day and it is supposed to help treat my cystic fibrosis....although I didn't feel any different after over a year of Orkambi, this medication is supposed to be better. Hopefully it works. With that price tag the damn thing better work. --- "There's nothing gay about liking a nice feminine penis." crazygamer21 <cite>ZCheveyo posted [p:905251737] in My new med... [t:76816619]...</cite> <quote>Just started a new medication Symdeko, which replaced my previous specialty medication Orkambi. It took a while for me to be able to get the approval and I just found out that they are charging $292,000 a year for the regimen. That shit is crazy. It's two pills a day and it is supposed to help treat my cystic fibrosis....although I didn't feel any different after over a year of Orkambi, this medication is supposed to be better. Hopefully it works. With that price tag the damn thing better work.</quote> ... Copied to Clipboard!
UnfairRepresent 07/17/18 5:26:56 PM #2:	ok --- ^ Hey now that's completely unfair. https://imgtc.com/i/14JHfrt.jpg <cite>UnfairRepresent posted [p:905251763] in My new med... [t:76816619]...</cite> <quote>ok</quote> ... Copied to Clipboard!
boxington 07/17/18 5:28:15 PM #3:	damn, that's crazy. hopefully you have a better experience with it. --- b-bb-box <cite>boxington posted [p:905251841] in My new med... [t:76816619]...</cite> <quote>damn, that's crazy. hopefully you have a better experience with it.</quote> ... Copied to Clipboard!
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P4wn4g3 07/17/18 5:51:55 PM #5:	I guess mine is cheaper. I was thinking these seizure meds were the most expensive thing. If the government just based the dollar on how much life saving medications are worth in America we would all suddenly be millionares. --- Hive Mind of Dark Aether, the unofficial Metroid Social Private board. https://www.gamefaqs.com/boards/851-dark-aether <cite>P4wn4g3 posted [p:905253169] in My new med... [t:76816619]...</cite> <quote>I guess mine is cheaper. I was thinking these seizure meds were the most expensive thing. If the government just based the dollar on how much life saving medications are worth in America we would all suddenly be millionares.</quote> ... Copied to Clipboard!
NeonOctopus 07/17/18 5:52:55 PM #6:	Atr you paying out of pocket or is insurance covering it >_> --- https://imgur.com/nlaY1qH https://imgur.com/zHJ1OCo https://imgur.com/btBPP4E https://imgur.com/1B3bMHw <cite>NeonOctopus posted [p:905253222] in My new med... [t:76816619]...</cite> <quote>Atr you paying out of pocket or is insurance covering it >_></quote> ... Copied to Clipboard!
kingdrake2 07/17/18 5:56:13 PM #7:	he's sorry to hear, it's not a joke when they want to charge you massive amounts of money just to help with the disease. --- I'm pretty much Stu from Rugrats making pudding at 4 in morning because I've lost control of my life - Polycosm <cite>kingdrake2 posted [p:905253398] in My new med... [t:76816619]...</cite> <quote>he's sorry to hear, it's not a joke when they want to charge you massive amounts of money just to help with the disease.</quote> ... Copied to Clipboard!
ZCheveyo 07/17/18 5:57:15 PM #8:	P4wn4g3 posted... I guess mine is cheaper. I was thinking these seizure meds were the most expensive thing. If the government just based the dollar on how much life saving medications are worth in America we would all suddenly be millionares. Yeah, I have a few expensive medications. I have a nebulizer that is CF specific called Pulmozyme that is $7,500 a month and another that I have to take every single time I eat or drink anything for caloric intake that costs $4,000. This is a bullshit and expensive disease. NeonOctopus posted... Atr you paying out of pocket or is insurance covering it >_> A combination of my insurance and my wife's insurance covers most of it. I only pay a little. --- "There's nothing gay about liking a nice feminine penis." crazygamer21 <cite>ZCheveyo posted [p:905253453] in My new med... [t:76816619]...</cite> <quote><cite>P4wn4g3 posted...</cite> <quote>I guess mine is cheaper. I was thinking these seizure meds were the most expensive thing. If the government just based the dollar on how much life saving medications are worth in America we would all suddenly be millionares.</quote> Yeah, I have a few expensive medications. I have a nebulizer that is CF specific called Pulmozyme that is $7,500 a month and another that I have to take every single time I eat or drink anything for caloric intake that costs $4,000. This is a bullshit and expensive disease. <cite>NeonOctopus posted...</cite> <quote>Atr you paying out of pocket or is insurance covering it >_></quote> A combination of my insurance and my wife's insurance covers most of it. I only pay a little.</quote> ... Copied to Clipboard!
Zikten 07/17/18 6:02:09 PM #9:	UnfairRepresent posted... ok this is not a random thing. this actually is a valid thing to post about. it's a huge deal in TC's life and this is a social board. he is allowed to talk about this. you just seem to not get why this is important to TC. you don't HAVE to come in this topic <cite>Zikten posted [p:905253711] in My new med... [t:76816619]...</cite> <quote><cite>UnfairRepresent posted...</cite> <quote>ok</quote> this is not a random thing. this actually is a valid thing to post about. it's a huge deal in TC's life and this is a social board. he is allowed to talk about this. you just seem to not get why this is important to TC. you don't HAVE to come in this topic</quote> ... Copied to Clipboard!
bluezero 07/17/18 6:03:17 PM #10:	Zikten posted... it's a huge deal in TC's life ZCheveyo posted... I only pay a little. Nope --- https://imgur.com/VleHYd3 http://steamsignature.com/card/0/76561197977989731.png <cite>bluezero posted [p:905253769] in My new med... [t:76816619]...</cite> <quote><cite>Zikten posted...</cite> <quote>it's a huge deal in TC's life</quote> <cite>ZCheveyo posted...</cite> <quote>I only pay a little.</quote> Nope</quote> ... Copied to Clipboard!
joestarrr 07/17/18 6:04:01 PM #11:	Yiiiiikes. Glad you have insurance. --- you can't spell american dream without eric andre <cite>joestarrr posted [p:905253805] in My new med... [t:76816619]...</cite> <quote>Yiiiiikes. Glad you have insurance.</quote> ... Copied to Clipboard!
Peter_Giffyndor 07/17/18 6:04:20 PM #12:	This is why people become supervillians <cite>Peter_Giffyndor posted [p:905253823] in My new med... [t:76816619]...</cite> <quote>This is why people become supervillians</quote> ... Copied to Clipboard!
NeonOctopus 07/17/18 7:18:36 PM #13:	ZCheveyo posted... I only pay a little. Define a little of 292k >_> --- https://imgur.com/nlaY1qH https://imgur.com/zHJ1OCo https://imgur.com/btBPP4E https://imgur.com/1B3bMHw <cite>NeonOctopus posted [p:905257756] in My new med... [t:76816619]...</cite> <quote><cite>ZCheveyo posted...</cite> <quote> I only pay a little.</quote> Define a little of 292k >_></quote> ... Copied to Clipboard!
CommonJoe 07/17/18 7:20:43 PM #14:	I would love to see a cost analysis of what it takes to make this medication. --- we are forced to subsidize views we may not agree with. Bond_543 In response to NPR tweeting the Declaration of Independence <cite>CommonJoe posted [p:905257882] in My new med... [t:76816619]...</cite> <quote>I would love to see a cost analysis of what it takes to make this medication.</quote> ... Copied to Clipboard!
pikachupwnage 07/17/18 7:21:27 PM #15:	UnfairRepresent posted... ok Fuck off --- https://imgur.com/cfZmEFd Even In sigs FOE! http://i2.kym-cdn.com/photos/images/newsfeed/000/665/328/d75.gif <cite>pikachupwnage posted [p:905257933] in My new med... [t:76816619]...</cite> <quote><cite>UnfairRepresent posted...</cite> <quote>ok</quote> Fuck off</quote> ... Copied to Clipboard!
ZCheveyo 07/17/18 7:22:29 PM #16:	NeonOctopus posted... ZCheveyo posted... I only pay a little. Define a little of 292k >_> The first delivery was $2,995, but the next will be covered with help from CFF. The Cystic Fibrosis Foundation, they have programs specifically designed to help with the costs of things like this. As for the others I listed, it is a combined $350. --- "There's nothing gay about liking a nice feminine penis." crazygamer21 <cite>ZCheveyo posted [p:905257974] in My new med... [t:76816619]...</cite> <quote><cite>NeonOctopus posted...</cite> <quote><cite>ZCheveyo posted...</cite> <quote> I only pay a little.</quote> Define a little of 292k >_></quote> The first delivery was $2,995, but the next will be covered with help from CFF. The Cystic Fibrosis Foundation, they have programs specifically designed to help with the costs of things like this. As for the others I listed, it is a combined $350.</quote> ... Copied to Clipboard!
solosnake 07/17/18 7:25:12 PM #17:	capitalism and medicine combine for the win! --- "We would have no NBA possibly if they got rid of all the flopping." ~ Dwyane Wade https://imgur.com/MYYEIx5 https://imgur.com/WGE12ef <cite>solosnake posted [p:905258131] in My new med... [t:76816619]...</cite> <quote>capitalism and medicine combine for the win!</quote> ... Copied to Clipboard!
kinetika_ 07/17/18 7:25:14 PM #18:	pikachupwnage posted... UnfairRepresent posted... ok Fuck off What exactly was the point of that post? And damn, TC, thats horrible. My dad has migraines and it's $500 per shot. It's stupid how much medical things cost. --- PSN: PurifyNothing <cite>kinetika_ posted [p:905258134] in My new med... [t:76816619]...</cite> <quote><cite>pikachupwnage posted...</cite> <quote><cite>UnfairRepresent posted...</cite> <quote>ok</quote> Fuck off</quote> What exactly was the point of that post? And damn, TC, thats horrible. My dad has migraines and it's $500 per shot. It's stupid how much medical things cost.</quote> ... Copied to Clipboard!
Ki_cat_ 07/17/18 7:28:56 PM #19:	It's still a hefty cost, even your "little". I can only imagine we pay a little for actual medicine but most of the cost is to cover all the research and development, in a nutshell. Not to mention all those programs don't get a lot of money on their own. --- People are afraid of what they don't understand. <cite>Ki_cat_ posted [p:905258339] in My new med... [t:76816619]...</cite> <quote>It's still a hefty cost, even your "little". I can only imagine we pay a little for actual medicine but most of the cost is to cover all the research and development, in a nutshell. Not to mention all those programs don't get a lot of money on their own.</quote> ... Copied to Clipboard!
kingdrake2 07/17/18 7:35:00 PM #20:	pikachupwnage posted... UnfairRepresent posted... ok Fuck off please don't flame the other user. others have made that comment before and got told not to do so. --- I'm pretty much Stu from Rugrats making pudding at 4 in morning because I've lost control of my life - Polycosm <cite>kingdrake2 posted [p:905258639] in My new med... [t:76816619]...</cite> <quote><cite>pikachupwnage posted...</cite> <quote><cite>UnfairRepresent posted...</cite> <quote>ok</quote> Fuck off</quote> please don't flame the other user. others have made that comment before and got told not to do so.</quote> ... Copied to Clipboard!
UnfairRepresent 07/18/18 7:57:09 AM #21:	Zikten posted... UnfairRepresent posted... ok this is not a random thing. this actually is a valid thing to post about. it's a huge deal in TC's life and this is a social board. he is allowed to talk about this. I neber said he wasn't --- ^ Hey now that's completely unfair. https://imgtc.com/i/14JHfrt.jpg <cite>UnfairRepresent posted [p:905285878] in My new med... [t:76816619]...</cite> <quote><cite>Zikten posted...</cite> <quote><cite>UnfairRepresent posted...</cite> <quote>ok</quote> this is not a random thing. this actually is a valid thing to post about. it's a huge deal in TC's life and this is a social board. he is allowed to talk about this. </quote> I neber said he wasn't</quote> ... Copied to Clipboard!
Kineth 07/18/18 8:04:37 AM #22:	This is one of the reasons I'm against the for-profit medical industry that we have. --- If you're not looking for any honest discussion, agreement, meeting halfway or middle ground, don't bother arguing with me. Selfish narcissists need not apply. <cite>Kineth posted [p:905286064] in My new med... [t:76816619]...</cite> <quote>This is one of the reasons I'm against the for-profit medical industry that we have.</quote> ... Copied to Clipboard!
008Zulu 07/18/18 8:15:10 AM #23:	Peter_Giffyndor posted... This is why people become supervillians I did, only because my neighbor wouldn't stop throwing his garbage in my backyard. One 'Death Ray' later, and suddenly I am on every nation's most wanted list. But on topic; Are the meds you're on now, a generic brand? --- Talent hits a target no one else can hit. Genius hits a target no one else can see. - Arthur Schopenhauer. <cite>008Zulu posted [p:905286371] in My new med... [t:76816619]...</cite> <quote><cite>Peter_Giffyndor posted...</cite> <quote>This is why people become supervillians</quote> I did, only because my neighbor wouldn't stop throwing his garbage in my backyard. One 'Death Ray' later, and suddenly I am on every nation's most wanted list. But on topic; Are the meds you're on now, a generic brand?</quote> ... Copied to Clipboard!
Chicken 07/18/18 8:23:54 AM #24:	I wish I saw 3 grand as a little. --- https://imgur.com/2FgO73L <cite>Chicken posted [p:905286642] in My new med... [t:76816619]...</cite> <quote>I wish I saw 3 grand as a little.</quote> ... Copied to Clipboard!
WrkHrdPlayHrdr 07/18/18 8:24:40 AM #25:	CommonJoe posted... I would love to see a cost analysis of what it takes to make this medication. Billions of dollars. Years to develop, scientists to pay, clinical labs to run, fees to pay, etc. It's that very first pill that is super expensive. (But still this is crazy expensive) --- "I also advised their executives through e-mail that further behavior could result in a cyber attack[...]" https://imgur.com/cSxy3Od <cite>WrkHrdPlayHrdr posted [p:905286662] in My new med... [t:76816619]...</cite> <quote><cite>CommonJoe posted...</cite> <quote>I would love to see a cost analysis of what it takes to make this medication.</quote> Billions of dollars. Years to develop, scientists to pay, clinical labs to run, fees to pay, etc. It's that very first pill that is super expensive. (But still this is crazy expensive)</quote> ... Copied to Clipboard!
Lord_Wombat 07/18/18 8:29:44 AM #26:	ZCheveyo posted... A combination of my insurance and my wife's insurance covers most of it. I only pay a little. How did you get it covered by 2 different insurance companies? I tried this a few years ago, and apparently I was stupid for even considering it. --- "Sorry, sorry, just... Being a dick... Sometimes it's hard to resist the urge to ruin other people's lives... -William Murderface <cite>Lord_Wombat posted [p:905286816] in My new med... [t:76816619]...</cite> <quote><cite>ZCheveyo posted...</cite> <quote>A combination of my insurance and my wife's insurance covers most of it. I only pay a little.</quote> How did you get it covered by 2 different insurance companies? I tried this a few years ago, and apparently I was stupid for even considering it.</quote> ... Copied to Clipboard!
Rika_Furude 07/18/18 8:42:20 AM #27:	Zikten posted... UnfairRepresent posted... ok this is not a random thing. this actually is a valid thing to post about. it's a huge deal in TC's life and this is a social board. he is allowed to talk about this. you just seem to not get why this is important to TC. you don't HAVE to come in this topic UR likes to troll people this way, just put him on ignore. His two gimmicks are being contrarian, and dismissing serious issues in offensive ways --- https://imgur.com/oQHLBrx https://imgur.com/ah5IE8D https://imgur.com/USV84z9 https://imgur.com/PSjlohO <cite>Rika_Furude posted [p:905287192] in My new med... [t:76816619]...</cite> <quote><cite>Zikten posted...</cite> <quote><cite>UnfairRepresent posted...</cite> <quote>ok</quote> this is not a random thing. this actually is a valid thing to post about. it's a huge deal in TC's life and this is a social board. he is allowed to talk about this. you just seem to not get why this is important to TC. you don't HAVE to come in this topic</quote> UR likes to troll people this way, just put him on ignore. His two gimmicks are being contrarian, and dismissing serious issues in offensive ways</quote> ... Copied to Clipboard!
Trigg3rH4ppy 07/18/18 8:44:54 AM #28:	UnfairRepresent posted... Zikten posted... UnfairRepresent posted... ok this is not a random thing. this actually is a valid thing to post about. it's a huge deal in TC's life and this is a social board. he is allowed to talk about this. I neber said he wasn't Shut the fuck up and leave, nobody wants you. --- ~A little nonsense, now and then, is relished by the wisest men ~ TWSSted since~ 3/27/12 https://imgur.com/zlaENmx <cite>Trigg3rH4ppy posted [p:905287268] in My new med... [t:76816619]...</cite> <quote><cite>UnfairRepresent posted...</cite> <quote><cite>Zikten posted...</cite> <quote><cite>UnfairRepresent posted...</cite> <quote>ok</quote> this is not a random thing. this actually is a valid thing to post about. it's a huge deal in TC's life and this is a social board. he is allowed to talk about this. </quote> I neber said he wasn't</quote> Shut the fuck up and leave, nobody wants you.</quote> ... Copied to Clipboard!
GigaSPX 07/18/18 8:55:26 AM #29:	TC, have you considered looking for this same medication outside of the US? You may be saving 3-5 times the staggering amount that you have to pay for right now. --- My sig is here. Yup. <cite>GigaSPX posted [p:905287596] in My new med... [t:76816619]...</cite> <quote>TC, have you considered looking for this same medication outside of the US? You may be saving 3-5 times the staggering amount that you have to pay for right now.</quote> ... Copied to Clipboard!
Coffeebeanz 07/18/18 9:06:43 AM #30:	Kineth posted... This is one of the reasons I'm against the for-profit medical industry that we have. Good luck manufacturing a monoclonal antibody drug in a nonprofit system. --- Physician [Internal Medicine] <cite>Coffeebeanz posted [p:905287976] in My new med... [t:76816619]...</cite> <quote><cite>Kineth posted...</cite> <quote>This is one of the reasons I'm against the for-profit medical industry that we have.</quote> Good luck manufacturing a monoclonal antibody drug in a nonprofit system.</quote> ... Copied to Clipboard!
Kineth 07/18/18 9:24:09 AM #31:	Coffeebeanz posted... Kineth posted... This is one of the reasons I'm against the for-profit medical industry that we have. Good luck manufacturing a monoclonal antibody drug in a nonprofit system. A lot of the input costs for something like that have to do with the for-profit system. --- If you're not looking for any honest discussion, agreement, meeting halfway or middle ground, don't bother arguing with me. Selfish narcissists need not apply. <cite>Kineth posted [p:905288573] in My new med... [t:76816619]...</cite> <quote><cite>Coffeebeanz posted...</cite> <quote><cite>Kineth posted...</cite> <quote>This is one of the reasons I'm against the for-profit medical industry that we have.</quote> Good luck manufacturing a monoclonal antibody drug in a nonprofit system.</quote> A lot of the input costs for something like that have to do with the for-profit system.</quote> ... Copied to Clipboard!
Yomi 07/18/18 9:29:57 AM #32:	Trigg3rH4ppy posted... UnfairRepresent posted... Zikten posted... UnfairRepresent posted... ok this is not a random thing. this actually is a valid thing to post about. it's a huge deal in TC's life and this is a social board. he is allowed to talk about this. I neber said he wasn't Shut the fuck up and leave, nobody wants you. This right here. --- Chez moi, il fait beau. <cite>Yomi posted [p:905288784] in My new med... [t:76816619]...</cite> <quote><cite>Trigg3rH4ppy posted...</cite> <quote><cite>UnfairRepresent posted...</cite> <quote><cite>Zikten posted...</cite> <quote><cite>UnfairRepresent posted...</cite> <quote>ok</quote> this is not a random thing. this actually is a valid thing to post about. it's a huge deal in TC's life and this is a social board. he is allowed to talk about this. </quote> I neber said he wasn't</quote> Shut the fuck up and leave, nobody wants you.</quote> This right here.</quote> ... Copied to Clipboard!
Balrog0 07/18/18 9:37:19 AM #33:	damn, that's even more than my dad's gleevec which is like 150k a year --- But to you who are listening I say: Love your enemies, do good to those who hate you, bless those who curse you, pray for those who mistreat you. <cite>Balrog0 posted [p:905289029] in My new med... [t:76816619]...</cite> <quote>damn, that's even more than my dad's gleevec which is like 150k a year</quote> ... Copied to Clipboard!
Questionmarktarius 07/18/18 10:40:56 AM #34:	This is just what happens when a drug takes upwards of a decade to finally get to market. Would you be willing to try an experimental drug for your debilitating condition five years ago, or would you rather wait until it's been lawyer'd through a bloated regulatory process? The manufacturer has to recoup development and approval costs somehow, and various European nations (as well as the one just north of here) mandating price-ceilings certainly isn't helping things. <cite>Questionmarktarius posted [p:905291616] in My new med... [t:76816619]...</cite> <quote>This is just what happens when a drug takes upwards of a decade to finally get to market. Would you be willing to try an experimental drug for your debilitating condition five years ago, or would you rather wait until it's been lawyer'd through a bloated regulatory process? The manufacturer has to recoup development and approval costs somehow, and various European nations (as well as the one just north of here) mandating price-ceilings certainly isn't helping things.</quote> ... Copied to Clipboard!
SimpleMan 07/18/18 10:54:14 AM #35:	And I thought my heart meds were expensive at nearly $170,000 a year. --- Forget your lust for the rich man's gold All that you need is in your soul <cite>SimpleMan posted [p:905292293] in My new med... [t:76816619]...</cite> <quote>And I thought my heart meds were expensive at nearly $170,000 a year.</quote> ... Copied to Clipboard!
ZCheveyo 07/18/18 1:54:21 PM #36:	Lord_Wombat posted... How did you get it covered by 2 different insurance companies? I don't know, I didn't handle any of that. My case manager from my doctor's office handled it for me. She is this great lady named Pam, and she does so much for me that my wife jokes that she (my wife) is just the side chick and that Pam is my real love. Chicken posted... I wish I saw 3 grand as a little. Oh, it isn't. It hurts us a lot....especially with how much I have to spend on food for just me a month. But I have to do it so we find a way. --- "There's nothing gay about liking a nice feminine penis." crazygamer21 <cite>ZCheveyo posted [p:905301998] in My new med... [t:76816619]...</cite> <quote><cite>Lord_Wombat posted...</cite> <quote>How did you get it covered by 2 different insurance companies?</quote> I don't know, I didn't handle any of that. My case manager from my doctor's office handled it for me. She is this great lady named Pam, and she does so much for me that my wife jokes that she (my wife) is just the side chick and that Pam is my real love. <cite>Chicken posted...</cite> <quote>I wish I saw 3 grand as a little.</quote> Oh, it isn't. It hurts us a lot....especially with how much I have to spend on food for just me a month. But I have to do it so we find a way.</quote> ... Copied to Clipboard!
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Current Events > My new medication comes to $292,000 a year.... (+) Yeah! (+)

Current Events > My new medication comes to $292,000 a year....