Current Events > On Feb 23, 2024, I was diagnosed with B-(Cell) Acute Lymphoblastic Leukemia.

(+) Yeah! (+)

2 months is a pretty damn good time to get it detected, so your odds are good at least.

Guide posted...

2 months is a pretty damn good time to get it detected, so your odds are good at least.

Especially for this type of cancer. Today is just such a lame day.

So it takes until 330pm my time to have somebody let me know that I've been taking the third day of chemo.

That's the first day it starts to hit ya, I guess.

Fellow cancer-goers, when did the treatment give you that first real pop on the shoulder?

Tails82 wishes you a speedy recovery

CaudalVeracity posted...

Tails82 wishes you a speedy recovery

Tails wishes for a speedy recovery to this website for reasons that have passed into the realm of psychosis obsession long ago, full stop.

But, thank you, I guess.

Hang in there TC, you got this.

Haven't had cancer myself but my mother went through it twice. Breast cancer and then seven years later, said breast cancer made its way into her spine somehow.

She still kicked its ass twice.

And by whatever deity is listening, so can you!

My deepest sympathies and best of luck!

[LFAQs-redacted-quote]

Well I do try to be a stand up comedian in my spare time :) (That's the easiest dunk on Tails+82 Nuthuggers I'll ever get :p) I do even have a comedy buddy coming in, and we're going to brainstorm some jokes for a show he wants to do with me after I effing kick cancers shit in.

Wishing you the best TC, you got this!

evilpresident posted...

Hang in there TC, you got this.

Haven't had cancer myself but my mother went through it twice. Breast cancer and then seven years later, said breast cancer made its way into her spine somehow.

She still kicked its ass twice.

And by whatever deity is listening, so can you!

Your mom is fucking awesome!
teep_ posted...

My deepest sympathies and best of luck!

No sympathies. Not yet. Only victory, even if that means I look like fucking Dry Bowser (awesome) after all this is done, I will go back to kicking butt in Smash Bros lmao.

5th of 30 days of treatment already begun! It will feel more real in a week or so when my hair starts falling out, but I have been told a few times that levels are good, and I have been tolerating treatment very well

I swear to God the hardest part of this so far is putting up with all the beeping lmao.

I don't know what to feel about a search for a stem cell donor this early in the game, but I was already asked to fill in some info on my brother and let him know of the possibility of transplants.

6/10 day so far

Hey good luck TC!! Thank you for sharing your experiences and treatments stories.

I hope everything goes well for you!!

And yes my wife is a mf badass!! And she's cheering for you too!!

Stay strong friend, you've got this!

I survived ALL cancer when I was younger, some 30 odd years ago.

Just keep on fighting...listen to your body (chemo sucks your energy big time).

You got this!

You can do it!

The first big day (the spinal tap chemo - hoboy) is coming today!

I totally trucked on through the first six days, and I've already had the bone marrow biopsy.

Bring it on.

josiskrazy posted...

Hey good luck TC!! Thank you for sharing your experiences and treatments stories.

I hope everything goes well for you!!

And yes my wife is a mf badass!! And she's cheering for you too!!

Bless you, friends

J03can posted...

Stay strong friend, you've got this!

Thank you so much :3
SparkMark1 posted...

I survived ALL cancer when I was younger, some 30 odd years ago.

Just keep on fighting...listen to your body (chemo sucks your energy big time).

You got this!

How would you figure is listening to your body, per se? I know it's probably different for everybody, but what would you do?
tripleh213 posted...

You can do it!

Yessir!

EyeWontBeFooled posted...

How would you figure listening to your body, per se? I know it's probably different for everybody, but what would you do?

Maybe it was more from my mindset of when I was a 10 year old. But i remember wanting to continue to do 10 year old things but the body wouldn't allow it due to fatigue. Especially true in the early days of heavy chemo.
It takes a bit to adjust to the new normal per se. If there is a choice between doing something not necessary vs resting, don't worry about choosing resting.

And, spinal taps and bone marrow shots were no fun but I got used to them. Kinda tells you how many I had
Good luck

SparkMark1 posted...

Maybe it was more from my mindset of when I was a 10 year old. But i remember wanting to continue to do 10 year old things but the body wouldn't allow it due to fatigue. Especially true in the early days of heavy chemo.
It takes a bit to adjust to the new normal per se. If there is a choice between doing something not necessary vs resting, don't worry about choosing resting.

And, spinal taps and bone marrow shots were no fun but I got used to them. Kinda tells you how many I had
Good luck

I continue to impress those close to me with my stamina, lol. But I see what you mean.

It was a double dose of chemo duty because of some slight delays, and I definitely feel it.

Been trying to be as normal as possible. Gathering a heck of a music collection from NewPipe hehe. And I'm actually expecting a visitor in a couple of hours.

But the longest parts are coming. Only 25% done. Thank you for your candor

Yeeeeep, today is the first of the annoying long slog days.

Chemo ripped a hell of a good sore throat through me, and bleeding started again in nose. So in goes the damn balloon.

Gosh, I hope they don't have to move the pick line. But, the diagnosing doctor came in to tell me this is all going well :3

Had the bone marrow specialist come in today.

He is not seeing issues!!!

I can do this! 19 days in hospital (I've actually been admitted since the 19th if Feb) don't seem so long now

EyeWontBeFooled posted...

Yeeeeep, today is the first of the annoying long slog days.

Chemo ripped a hell of a good sore throat through me, and bleeding started again in nose. So in goes the damn balloon.

Gosh, I hope they don't have to move the pick line. But, the diagnosing doctor came in to tell me this is all going well :3

Keep strong man. Horrible what you have to endure here. Did they give you a port for the chemo infusions?

Did they give you those weird ice gloves to wear during chemo? My mom had to wear them for a while for her fingernails. Looked very strange, almost Sci-fi.

Sandalorn posted...

Keep strong man. Horrible what you have to endure here. Did they give you a port for the chemo infusions?

Not quite there yet. Just lots of jabs and intravenous applications so far.

evilpresident posted...

Did they give you those weird ice gloves to wear during chemo? My mom had to wear them for a while for her fingernails. Looked very strange, almost Sci-fi.

No, not that either. Wish I had more of the sci-fi stuff haha. It's been pretty boring really. Especially when it gets annoying to speak after the body WAY overcompensates to a goddamn lozenge for the sore throat lol.

19 more days left. Already been in hospital that long, so I rightfully feel halfway done :)

They're finally taking the mouth pain more seriously and getting me on better meds for it.

The poor young student nurse told me she had shaky hands.....plz don't say that. I bleed lmao

You know when you end up with a multiple sclerosis diagnosis for over 8 years, and THEN you get to spend over a month in hospital for freaking leukemia, you start to think your life is destined to go down the life of crime? Lmao

Like, I've had over a dozen MRI. I should be Magneto: Master of Magnetism at this point XD

EyeWontBeFooled posted...

You know when you end up with a multiple sclerosis diagnosis for over 8 years, and THEN you get to spend over a month in hospital for freaking leukemia, you start to think your life is destined to go down the life of crime? Lmao

Like, I've had over a dozen MRI. I should be Magneto: Master of Magnetism at this point XD

Unlimited power!

Though oddly enough, strange things do happen after the chemo and your hair starts growing back. My mother's hair was a lot thicker and my auntie suddenly had natural curls when hers grew back. Never had them before.

evilpresident posted...

Unlimited power!

Though oddly enough, strange things do happen after the chemo and your hair starts growing back. My mother's hair was a lot thicker and my auntie suddenly had natural curls when hers grew back. Never had them before.

Hair still hasn't fallen out yet. It might even be near the tailend of hospital treatment that this happens.

But when that happens, I will refer to my room as the Danger Room, and try and summon my X-Men to me lol

https://gamefaqs.gamespot.com/a/forum/1/10b80ca9.jpg
Dis you?

evilpresident posted...

https://gamefaqs.gamespot.com/a/forum/1/10b80ca9.jpg
Dis you?

Not yet, but soon.

Wolverine already knows we eat All-Meat pizza with EXTRA cheese dagnabbit! Bad localization there :P

Today was a bad day physically. Mostly because my own damn mother simply cannot stop being my mother.

Basically holding me hostage from visits with my grandma for the prettiest of reasons. Grandma doesn't drive so it's easy to be manipulative like that......

Starting to raise my blood pressure.

And speaking of, I had another big nosebleed that lasted too long that after some serious stop-gap measures we FINALLY got under some control after an hour.

Then the nurses INSISTED I have a shower because the poor staff were gonna be BUSY on Monday.

I was tidy, my nose looked bad because of the gauze, but damnit I had a clean gown! Could it NOT wait until morning for even a sponge bath?

No.

Guess what happens after a nice warm shower opening up pores in my nose? Another FUCKING nosebleed that two different nurses have to deal with while I'm extremely embarrassed in the shower.

And with less than ten minutes before I was expecting two different visits for company who get to watch as the nurses stifle the bleeding desperately a second time.

Definitely spoiled the rest of the night. Hope it was fucking worth it to clear up your schedules by 20 minutes.

16 more days, and my grandma gets to visit next week. I have something to look forward to :)

Getting woken up at night every two hours or so just for me to go 'CACK, yeah that one was a 5 on the pain scale' is quite unsustainable.

I'm not asking for opiates or anything. But we gotta get some adjustments going with dilotid(sp?).

Protip: Lidocaine is the secret ingredient. Really provides that negative pressure feeling that's even making my ear feel better haha.

I still miss my cat very much

Whelp, today is the day the hair starts coming off.

Glad it's not coming off in big clumps like POOF, ANNNND IT'S GONE.

But, today might be a 'feelings day' for sure.

I hope the self bumping isn't bothering anybody. This is about the closest thing I'm going to muster for a journal of this experience

[LFAQs-redacted-quote]

My platelets are still like 5x lower than they should be to be healthy, but the next two weeks plus outpatient care should get me off the ropes and back on the road better than ever :)

Thank you for your support!

Second batch of intravenous chemo begins today!

Kill it. Eviscerate it. Let the cancer die.

I'm not going anywhere yet.

EyeWontBeFooled posted...

Second batch of intravenous chemo begins today!

Kill it. Eviscerate it. Let the cancer die.

I'm not going anywhere yet.

Fuck that cancer!

Let's go man!!

EyeWontBeFooled posted...

Second batch of intravenous chemo begins today!

Kill it. Eviscerate it. Let the cancer die.

I'm not going anywhere yet.

Damn straight

Holy shit, they're doing the 10 minutes of intravenous chemo AND the lumbar puncture chemo today.

Bring it on. I'm ready for just two weeks of prednisone after.

Only a 1-5% chance I wind up in the ICU lmao. I like those odds.

EyeWontBeFooled posted...

Whelp, today is the day the hair starts coming off.

Glad it's not coming off in big clumps like POOF, ANNNND IT'S GONE.

But, today might be a 'feelings day' for sure.

I hope the self bumping isn't bothering anybody. This is about the closest thing I'm going to muster for a journal of this experience

Don't worry about the self bumping. Venting is good. Like screaming into a pillow. Except we occasionally answer back with a silly joke.

EyeWontBeFooled posted...

Holy shit, they're doing the 10 minutes of intravenous chemo AND the lumbar puncture chemo today.

Bring it on. I'm ready for just two weeks of prednisone after.

Only a 1-5% chance I wind up in the ICU lmao. I like those odds.

Not a gambling girl but I also like those odds. Rooting for ya <3

evilpresident posted...

Don't worry about the self bumping. Venting is good. Like screaming into a pillow. Except we occasionally answer back with a silly joke.

Not a gambling girl but I also like those odds. Rooting for ya <3

Just need to lay down for a whole on my back, but I'm surprisingly good

Two weeks left! I keep just rolling with the treatments!

Anyone out there who can tell me how outpatient care went after you were discharged from hospital?

Am I just going to hit thar wall AFTER they let me go? Or is it different for everybody?

Damn, today is the day the queasiness is really setting in.

My body WANTS to get better, but it seems almost confused as to why it's not. If that makes any sense. Lots of hiccoughing that really irritates the inflammation in the throat :/

But I really am getting better. Just tired today. Mornings are the toughest because you can't even have a warm meal because people are ALWAYS coming in to do vitals or ask questions or draw blood or give you blood. Lame

Afternoons are nice tho :)

EyeWontBeFooled posted...

Damn, today is the day the queasiness is really setting in.

My body WANTS to get better, but it seems almost confused as to why it's not. If that makes any sense. Lots of hiccoughing that really irritates the inflammation in the throat :/

But I really am getting better. Just tired today. Mornings are the toughest because you can't even have a warm meal because people are ALWAYS coming in to do vitals or ask questions or draw blood or give you blood. Lame

Afternoons are nice tho :)

Chemo does wreck face in your body. It's basically ripping your defense systems apart and all that nasty stuff.

Any word on whether you'll need immunotherapy after?

evilpresident posted...

Chemo does wreck face in your body. It's basically ripping your defense systems apart and all that nasty stuff.

Any word on whether you'll need immunotherapy after?

Quite likely. I caught this early. But not THAT early. There will be a few visits tk the Oncology center for some standalone treatments for a couple months then once a month afterwards.

Still a bit of a road ahead, but now I know the struggle has a name. I know I what I'm up against. I can keep going, and I didn't hear no fucking bell.

It's not the hair shave that's the surrender.
It's putting on hospital adult diapers.
Protip: Get someone to bring you as much clean underwear as they possibly can.

The surrender is having one nurse try to extract blood from you with a needle in one arm with several blown veins while the other nurse gets perfectly good blood from your pick line.

After having multiple sclerosis for 8 years, diabetes for 3, the MEDICATION for MS destroying my thyroid, and now this?

I don't want an immune system anymore. Mine's no good lol.

But I'm so grateful every day that MS didn't take more from me. I am still here, but I don't know how or why haha

Oh good and now they tell me the pick line is infected and my body is being VERY RESISTANT to antibiotic treatment. They have one left to try until Monday.

Fuck me sideways

Well, they're going to mess with the pick line AGAIN tomorrow morning. I guess it's going right on my chest.

Hopefully, I'll be far less reliant on the antibiotics afterwards, and my body can focus on pumping up my platelet counts :3