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TopicAnyone got a rare disease here?
TeaMilk
05/10/22 1:07:34 AM
#1:


I was born with a pretty rare neuromuscular condition. It's not well documented, but estimates are at 2-12 people per 1,000,000. My specific variant doesn't really have treatment, but I'm lucky to at least have a diagnosis so I've been able to get accommodations like a wheelchair and stuff without too much trouble. It's bizarre because there's no history of it in my family, but my brother also has it, and a sister who died as an infant also likely had it.

What about you guys?

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