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TopicAnime, Manga, VN, JRPG, Related Things Discussion Topic LXXXVII
YoukaiSlayer
11/08/19 4:23:15 PM
#357:


Well, it seems like my medical battle has taken a step forward. The neurologist is pretty convinced I have a rare condition called dysautonomia. It's actually a bit of an umbrella term for a few different conditions and it can be caused by other problems or appear on its own. I won't know for sure until I get the testing for it that thankfully we scheduled months back just in case which will be in mid december (theres like 1 guy total that does the testing in my state and he doesn't take any sort of financial aid).

It uh, really sucks though. Unless it's from an underlying condition, most of which are awful like parkinson's disease which my grandfather recently died from, it won't ever be cured, just sorta treated. Even with treatment though, I may never have a decent quality of life. I just don't know for now I guess. I'm trying to stay positive but it kinda feels like my life is over.

On the bright side I guess, only a really rare form of it called MSA that I likely don't have due to symptoms is fatal. It's generally known as a disease you just suffer with. The neurologist office I went to that has been practicing for 15+ years has seen 7 cases of it they said and one is my mom and another is my aunt. They have garbage quality of life and both wish for death. I feel like I can't talk to my mom about it cause she feels guilty about having kids in the first place with how sick she is. I'm breaking down crying in my room right now and I hope she can't hear it. I should probably be happy it's not worse but theres still so much I want to do that I don't think I'll be able to anymore. I guess theres still some hope that'll be reversible or at least manageable.
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